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Friday, March 26, 2010

My turn to forget...

There are hard days, and there are hard days, we say.

It's been a hard week.

Last Saturday I picked Mom up early. We had lunch with my brother in law, Tim then came back to my house to hang out for the afternoon. When I'm working around the house on the weekends, I like to have her here, for a little socialization on both our parts, even if she decides to go take a nap. It gets her out of the house, we spend real, normal boring family time together.

We had a mundane interruption to the day, when I had to run to Office Depot for toner. I was locking up the house and herding her down the sidewalk when she asked me "do I have Alzheimer's?" I distractedly answered, "Yep."


When I say I was completely inconsiderate, I mean I was just that. I didn't put one iota of thought into my response. She knows she has Alzheimer's, so I simply figured there was more to the conversation. She might then declare "but I can still do things!" It would be a typical conversation

About 1/2 hour later, we were on our way home, and she suddenly burst into tears "why...why...would you love me? Why would you like me?" I was stunned with the outburst, but began giving her a list of reasons I love her, and asked her where this was coming from.



She sobbed harder. "With what I have. I'm not a good mother."
It wasn't until then that it hit me: She hadn't known she had Alzheimer's. She knew at one time, but she'd forgotten, and I had completely pulled the rug out from under her with my nonchalant answer to her question.

And for the last week, I have not been able to undo this; she just found out she has a disease, and she cannot be cheered. She a failure. She can't drive. She is supposed to be in a role of helping me, and she—she can't do anything!!!!

There is some light, today, after a week of convincing her that she is beautiful and worthwhile. "You know," she says, "I can do a lot of stuff." I joined right in on all of the stuff she does, "You read the paper every day, and you always know the weather. You take care of Buddy, and take care of yourself all day long until I get here"

"I can't take a shower," she reminds me.

"Yes you can! The faucets turn backwards, and it's hard to get the warm water right, that stupid thing is half-broken!" I tell her. "Don't I just get the water right and you wash yourself?" It's kind of true, and she's gleeful. And she can answer the door, and she can call me on the phone, and...

...and it was a tough, tough week with Alzheimer's. There is simply a point of no consolation, where you do and say what you can, and you have to let go and let God, and this will work itself out, and she'll come to terms with her situation.

Someday, she will forget again. And then...I will either be ready for it, or I'll have forgotten also, that she doesn't know.

Tomorrow is always a new day.

4 comments:

CottonLady said...

Just got your post read today. My dear, having been there, there will always be some nonchalant word that strikes the other person like it was the first time said. You just keep plugging along and showing your love and like you said she will forget it. Just don't berate yourself too much, we caregivers are human too. Dementia is such a roller coaster. Hang on, it sounds like you are doing well.
Blessings to you!

geewits said...

You are not allowed to be hard on yourself! You are doing a great job and it was simply something that happened. Keep up the good work. You are an angel.

Anonymous said...

Well my lady, this is coming late, but this is when I'm reading it. You wrote about it and now it OUT of you and over with. Even though you didn't actually screw up, it's clear that you Feel you did, that you wanted to get it 'righter.' But she will forget again and the next time you will just be as gentle and right as soft rain. It's so hard being a care taker. I know. Don't be hard on yourself. E

Anonymous said...

Even later.......I miss the updates.

No family members dealing with what you are....but I so enjoy your style of putting real life into words. I hope only for the best for you and mom...but speaking for others (if I could be so bold)....commence lol